This is speaking volumes to me...nobody understands..not even me sometimes...I am so tired of explaing SPD to people with probing questions...thanks for the post! Forgiveness is a good plan!
~Kate
I just signed up for this website and can't believe I didn't know about it until now. "Forgiveness" hit me so hard!! My daughter is now 9.5 years old and was dx. at age 6. I relate to Kate...I am so tired of explaining SPD to people expecially the schools. Their questions go from curiousity to almost debating me and patronizing...such as "alot of kids can't sit still and don't like a lot of foods, why do you think your daughter has SPD?? UGGGGHHH!!!!!!!!! I have been told to discipline her more, spend more time with her, etc. They just don't have a clue. The disappointments and frustration sometimes turn into hopelessness. Though, I've been at this for 3 years and I do see postive changes in Caitlyn, so the hopelessness is much less than the beginning. I must say, she JUST received an IEP this February. AFter all these years. I had to go so far out of my way...moving to Orlando for a year and attending Lifeskills, gathering speech and OT notes the the entire 3 years and finally presenting data to our current school system. Caitlyn still doesn't "qualify" but due to perservence, a private psychologist and psychiatrist noticed Caitlyn had Aspergers this past January. That dx. helped Caitlyn receive the IEP. This child has been through so much and so have have I. "Forgiveness" is something I will read each day, because I will need it!! Thank your for writing this. Barbara
I am glad that my "Forgiveness" poem resonated with you. I understand everything that you shared in your post - it truly seems like trying to convince everyone that the world is round. Your perseverance on behalf of your daughter is inspiring - way to go! And, thank goodness that you have found professionals who will go the extra mile with/for you.
Hang in there - I find myself having to read and re-read it over and over again as well...
Boy isn't this the truth! I fought my family for a long time before they saw what I did, and there are still a few that just don't get it. I am in the process of fighting the school on this point (including misunderstandings about diagnosis). Luckily, I am a special education teacher and recognized the spd early. I am comfortable with my son's issues and tend to catch things early enough to head off an explosion...but there are some days that I would rather crawl back under the covers than deal with it!
Thanks so much for your comment. It's so comforting to know that there are people like you out there who completely get where I'm coming from. It helps me to remember that I'm not alone in this or a complete "off the wall" loon.
Crawling "back under the covers" is something I can totally relate to as well.