SPD Parent Support

Marianne Mancone
Marianne Mancone
  • 50, Female
  • Longwood, FL
  • United States
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Mary Gardner left a comment for Marianne Mancone
figuring it all out this AM. Usually from 7PM-9PM or 6:30-8:30.... I'll post it all today.. lots of coordinating.. etc.. booking speakers.. etc.. will be back in touch! What is your email? I send out an email announcement!
Aug 27, 2009
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Mary Gardner left a comment for Marianne Mancone
Oh girl..we're doing all of the same things..loan mod.. cutting back.. etc.. it's tight for everyone now. YES... you can go to your local health food store and ask for BRAIN ON... e3live is the company.. and/or you can order thru me on…
Aug 27, 2009
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Marianne Mancone left a comment for Mary Gardner
Hi Mary, me again. What time is your meeting Sept. 9th? Not sure if I can make it but will try depending on sitters.
Aug 27, 2009
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Mary Gardner and Marianne Mancone are now friends Aug 27, 2009
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The Orlando Chapter of the SPD Support Group - meets monthly at St. Margaret Mary Catholic Church in Winter Park, FL

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This group is a safe and nurturing support group designed to help and support families who are figuring out their children's issues such as SPD, ADHD, Autism, allergies, behavioral issues. We invite anyone who wants to understand the core issues.See More
Marianne Mancone joined Mary Gardner's group Aug 27, 2009
16 Comments
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Marianne Mancone left a comment for Mary Gardner
Hi Mary, O.K. you got my attention. We just upped Anthony's medication because his anger/anxiety went over the top. However, I was remiss in giving him his B12 shots. Ughhh, always so much to do. He has been GFCF for over a decade so that is…
Aug 27, 2009
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Mary Gardner left a comment for Marianne Mancone
Hi Marianne! I was going thru the site.. saw our old exchange and lots has happened in our family regarding our son. We went no gluten.. mostly no casien.. and have added a blue green algae that I'm now a sales reps to for wholesalers... (whole…
Aug 27, 2009
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Marianne Mancone commented on Marianne Mancone's blog post 'New Member'
Hello Everyone, it's been months since I posted. I've been treating my son for pyroluria and adminstering B12 shots the the buttocks. He likes them and it is part of his protocal. I have been able to lower his medication and eliminate one…
Jun 21, 2009
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Marianne Mancone left a comment for Mary Gardner
Hi Mary, just wanted to know if you tried B12 shots? We have started them with our son (one so far while he is sleeping) and the next day he broke a morning ritual he has carried on all year. I found that pretty darn amazing. We are giving them…
May 24, 2009
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Marianne Mancone left a comment for Mary Gardner
Hi Mary, here is the short and skinny of my findings based on internet searches. If your child is hyper senstitive to light and sound, has lots of anxiety, short tempered, food allergies, brain fog or "space cadet" and just seems lazy...I…
May 6, 2009
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Mary Gardner left a comment for Marianne Mancone
Hi Marianne... I'm just not familiar with that treatement... so am curious to hear about what everyone is doing! I'm always open to hearing new concepts/ideas!!! Mary
May 6, 2009
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Marianne Mancone left a comment for Mary Gardner
Hi Mary, I'm not a great blogger but will share what I've learned. For now, I'm in the infant stage of keeping a diary on my son before pyroluria treatment. There are research papers out there in cyper world written by Dr. Walsh…
May 6, 2009
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Mary Gardner left a comment for Marianne Mancone
Hi Marianne! You sound like you are ahead of many of us.. we'd love for you to blog or to add advise.. or if you're open to write for our up and coming newsletter.?? You have a TON of experience... obviously! It's nice to know people…
May 6, 2009
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Marianne Mancone commented on Marianne Mancone's blog post 'New Member'
Dear Heather, I found out about pyroluria about 5 years ago through the Pfeiffer Treatment Center but for some stupid reason I stopped treating my son for it. I guess I just had too much going on and didn't realize the treatment was life long.…
Apr 22, 2009
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Heather Craven commented on Marianne Mancone's blog post 'New Member'
Hi Marrianne, No, I haven't heard of pyroluria, unless it has something to do with bacteria in the stomach or is that pylorie? Anyways, I will definately look it up. Please share what you've discovered. How did you find info. about it? I…
Apr 22, 2009
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Marianne Mancone commented on Marianne Mancone's blog post 'New Member'
thanks, Heather. My son wears a weighted vest I bought at WalMart for $50. It is a Gold's Gym cross trainer vest. Perfect. He requests when to wear it and when to take it off. Heather, have you heard of pyroluria? We are in the midst of testing…
Apr 20, 2009

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Marianne Mancone's Blog

Marianne Mancone

New Member

Hi, I am a new member to the spdparent support group but have a son who is almost 17 years old. He is a sensory poster child. I am learning more about him each day and think I may have touched on some of the underlying reasons for his extreme sensory problems. I hope to solve these issues in the next several months and will report my findings but not until then. I am a strong believer in the over/under methylated child.

Posted on April 20, 2009 at 7:43am — 5 Comments

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At 10:09am on August 27, 2009, Mary GardnerMary Gardner said…
figuring it all out this AM. Usually from 7PM-9PM or 6:30-8:30....
I'll post it all today.. lots of coordinating.. etc.. booking speakers.. etc..
will be back in touch!
What is your email? I send out an email announcement!
At 9:50am on August 27, 2009, Mary GardnerMary Gardner said…
Oh girl..we're doing all of the same things..loan mod.. cutting back.. etc.. it's tight for everyone now. YES... you can go to your local health food store and ask for BRAIN ON... e3live is the company.. and/or you can order thru me on line.. but it's a wholesale comp so you have to order 5 bottles at a time so the total including shipping is around 180 + .... and a bottle lasts about a month..the bottles, (depending on the store r about $40-45 a piece).... but now that my whole family is on it..we use more. Its been the biggest change we've done - but I KNOW that the prayers we've offered up led us TO this product. Where are you? THey're seeking sales reps in every state. I"m the FL state rep. It literally has CHANGED our life. It'll replace the B shots for sure... and if you go to my website you can read my story about it: www.marygardner.com - front page... it's 100% money back guarantee...
My email is mary@marygardner.com if you want to chat ... I cant' shut up about it.. JEremy is now OFF meds (so am I) and he's doing good in school!!!
YAHOOO!!!
At 8:51am on August 27, 2009, Mary GardnerMary Gardner said…
Hi Marianne!
I was going thru the site.. saw our old exchange and lots has happened in our family regarding our son. We went no gluten.. mostly no casien.. and have added a blue green algae that I'm now a sales reps to for wholesalers... (whole foods..etc) called BRAIN ON. It's a superfood.. and my son can go from grumpy to laughing in less than 3 minutes after digesting. He's now off of all medications and for the first time ever - 3rd grade.. behaving in school on no meds! It's a miracle. The algae has taken away my anxiety and I went off ADD meds in 3 days with no side effects using it. I am making all of my friends take it.. I wrote about it and there is a link on my website: www.marygardner.com. It's the first page. It has changed our life completely. We're also cooking EVERY SINGLE meal - no school lunches.. and I'm using WILDTREE, an all natural company which is awesome.. not no gluten but we subsitute.
Would love to hear your update!!! Thanks for sharing with the site!!! mary
At 5:49pm on May 6, 2009, Mary GardnerMary Gardner said…
Hi Marianne... I'm just not familiar with that treatement... so am curious to hear about what everyone is doing! I'm always open to hearing new concepts/ideas!!! Mary
At 11:37am on May 6, 2009, Mary GardnerMary Gardner said…
Hi Marianne!
You sound like you are ahead of many of us.. we'd love for you to blog or to add advise.. or if you're open to write for our up and coming newsletter.?? You have a TON of experience... obviously! It's nice to know people who make it thru.. and just find a way. Thanks for sharing.. and let me know.. w'ell print whatever you write! :) thanks! mary
 
 
 

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