SPD Parent Support

Hi Everyone!

I was curious if any parents (especially those whom have been through OT ) have been able to notice sensory issues in family members?
My mother has always related with my daughter when it comes to being hyper sensitive to touch. She recalls the knifing pain of having her hair brushed, always wearing long sleeves even on hot days. She loves to read but can't without falling asleep, so she munches very salty "alerting" snacks. She claims she runs to read so she does'nt get pudgy from reading!
My husband hates crowds, even at family functions where he's known everyone for 17 yrs. I notice the stress on his face and he'll take 15min. "Time Outs". When he comes back he's good again for awhile but then the anxiety comes back . He says he's always been this way even as a kid he remembers always needing the same routine.
My son is an intense sniffer! He's sniffs all food putting his nose way into it before eating. And went through a time where he chewed all of his shirt collars to bits.
I personally have a low tolerance for crowd noise, I usually get headaches at amusement parks and malls. I never go into a shopping place without knowing exactly what I want and then leave ASAP.
My step -dad always teased that my daughter was going to break his record of not walking until 18 months. She walked 18 months 1 Day! When he hugs you he bashes into you sometimes knocking my sun glasses off! He's broken things in every family members house! a drawer pull here, a window shade there. He's not such a good judge of space and proper pressure.
It's interesting that these things have just become normal personality quirks, that draw affectionate teasing. My daughter seemed to get the lions share of symptoms or did she? After all SPD is a fairly, newly discovered phenomenon. It gives me hope to think that my big quirky family has shared a number of successes, (my step-dad was an opthamologist of all things for 35 yrs where he met my Mom a lab tech.), and healthy relationships. They also have fantastic stories of getting through lifes challenges. Maybe SPD is something you learn to grow into there has to be a positive side :) I would love to hear other peoples stories!

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Amanda Martin Humphrey Comment by Amanda Martin Humphrey on April 15, 2010 at 4:36pm
Heather, I find that I DEFINITELY share some of my son's SPD traits. I seem to find them everywhere now that I know what to look for! lol :) I would tend to say that it certainly seems to be indicative of inherited tendencies, but I've also heard of some cases where there is no familial similarities. Who's for sure?
Mary Gardner Comment by Mary Gardner on May 6, 2009 at 12:05pm
Hi Heather and Barbara:
Great posts.. thanks for the resources and information! We're starting to do the no glutten/casin diet again.. it's so hard.. but w'ere determined. Interesting that diets can totally improve the quality of our lives. And its shocking that doctors don't know this or advocate it.. so we parents HAVE to!

I'm writing a book about our experiences..

Also.. I am a very outgoing person but ALSO get overstimulated and have to take TIME outs .. and go and be alone.. so it's not only people with social anxiety issues. I push and push and get very UP and then CRASH sometimes.. and my brothers BOTH had sensory issues as a kid.. so I know that these are genetic. I'm also a fine example of having ADD.. and finally decided to do something about it.. and eventually will do neurofeedback which I hear works wonders!

Thank you both for joining our site.. lets keep this great conversation going! It's so HELPFUL!! Mary
Heather Craven Comment by Heather Craven on April 20, 2009 at 2:03pm
Hi Barbara!
Thanks so much for sharing. It's really amazing isn't it, how lucky we are that our kids have been diagnosed. I also think how lucky we are to have family members that can relate to our kids. I know my husband for instance can pick out things that might have triggered my daughter before it even occurs to me , because as you said he feels she's his "Mini Me". I bet Caitlyn can even help out Grandma become more aware:)
I just want to mention something quickly I suffered severe migraines since I was a teen. My father at 60 was diagnosed with Celiac disease (we shared the same symptoms) I then was also diagnosed at 33. Celiac is a disease that effects 1 in 133 people, mostly eastern euro heritage, irish, ect. It is an intolerence to wheat gluten and is often misdiagnosed as IBS. Let me tell you when I went gluten free(GF) I havent suffered a migraine in 6 yrs! And I used to use narcotic pain relievers at least twice a month! If this sounds remotely like Mom have her check out Celiac.org.
All The Best,
Heather
Barbara Gorin Comment by Barbara Gorin on April 20, 2009 at 1:35pm
Oh, one more thing, my mother suffers from chronic migraines. She thinks food triggers her the most. I've watched her and I honestly think she gets severly overloaded. But since she doesn't know the cues nor does she have a great understanding of SPD...she wouldn't recognize or associate her migraines with anything sensory.
Barbara Gorin Comment by Barbara Gorin on April 20, 2009 at 1:33pm
I sure do see differences with my daughter and my mother and ME!! I can relate to my daughter so much!! She is me as a younger child and I wish I was able to receive OT interventions when I was younger. As her OT said...children with SPD will grow into it, not out of it if not treated. She's tested me on a few things and I have SPD written all over the results. Though, my mother can't handle crowds, not just the noise but the closeness of people, she is a VERY VERY VERY picky eater, she is VERY VERY VERY picky about what she wears and her vocabulary and cognitive understanding of things is largely delayed. I've always know her to be like this. My issue are low muscle and weak vestibular. I can't turn one circle without losing balance and getting extremely dizzy. It's motion and visual. I can't even watch moving objects without losing some kind of motor coordination. I've learned to compensate and helping Caitlyn helps me too. Thanks for starting this post.

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